Mwana wanu anapezeka ndi matenda a shuga a mtundu woyamba. Chotsatira ndi chiyani?

Maphunziro a Zaumoyo

Kupeza kuti mwana wanu ali ndi matenda a shuga amtundu woyamba ndikusintha masewera. Zili ngati kutengeka kupita kudziko losadziwika, komwe muyenera kuphunzira chilankhulo chatsopano komanso chizolowezi chatsiku ndi tsiku. Ngakhale zinthu zina zingawoneke ngati zodziwika bwino, monga chakudya ndi masewera olimbitsa thupi, zinthu zina ndizatsopano, monga kutenga insulin ndikuyesa magazi m'magazi. Kuyendetsa matenda ashuga aubwana ndikupanga chilichonse kuti chigwire bwino ntchito kumafunikira njira yatsopano yamaganizidwe ndi zochita.

Zitha kukhala zowopsa komanso zazikulu - kwa inu ndipo kwa mwana wanu.

Kodi matenda a shuga a mtundu woyamba amakhudza bwanji thupi la mwana wanu?

Mtundu wa 1 shuga (T1D), womwe nthawi zina umatchedwa kuti matenda ashuga achichepere, umachitika thupi la mwana wanu likasiya kutulutsa insulin, mahomoni omwe amathandizira kusintha shuga (shuga) kuchokera pachakudya kukhala mphamvu. Popanda izo, thupi silingathe kuwongolera mwachilengedwe mashuga amwazi. Chifukwa chake, mwana wanu amayenera kulandira insulini kuchokera kwina — kumubaya jakisoni kapena kumulowetsa m'thupi ndi chida chotchedwa insulin pump. Kupanda kutero, kuchuluka kwa shuga wamagazi kumatha kukwera kwambiri, komwe kumatha kubweretsa zovuta zingapo kwakanthawi kwakanthawi kuchokera ku khungu mpaka kuwonongeka kwa ziwalo ndi ziwalo ngati sichinalandiridwe.

Kuti muwonetsetse kuti kuchuluka kwa shuga wamagazi kumakhala koyenera mwana wanu akadya, muyenera kutenga dontho lamagazi pachimake ndikugwiritsa ntchito kachipangizo kotchedwa glucometer kuti muyese. Zotsatira zilizonse zimawongolera magalamu azakudya zomwe mwana wanu angadye, kuchuluka kwa insulin, kapena kuchuluka kwa masewera olimbitsa thupi omwe mwana wanu amafunikira. Shuga wamagazi si vuto lokhalo. Shuga wamagazi ochepa amatha kuyambitsa mavuto mwana wanu ali ndi insulin yochulukirapo komanso alibe chakudya chokwanira mthupi. Ndizosamalira kwambiri.

Kodi mungathandize bwanji mwana wodwala matenda ashuga?

Tidafunsa makolo angapo komanso akatswiri a matenda a shuga malangizo omwe angapereke kwa iwo omwe ali ndi vuto la matenda atsopano a T1D. Nawa maupangiri awo.

1. Phunzirani zoyambira.

Kusamalira matenda ashuga kumaphatikiza kuwerengetsa kudya, kuchita masewera olimbitsa thupi, kumwa mankhwala, komanso kuyesa ndikuthandizira kusintha kwa magazi m'magazi. Palibe mankhwala a matenda a shuga aubwana, koma pali mankhwala othandiza kwambiri. Kuzindikira momwe chinthu chilichonse chimagwirira ntchito m'thupi ndikofunikira pakusamalira chisamaliro cha mwana wanu.

Maphunziro a banja lonse ndi ofunikira, atero a Jennifer McCrudden, APRN, FNP-C, CDE, wothandizira namwino wothandizira mabanja komanso wophunzitsa odwala matenda ashuga. Kudziphunzitsa nokha powerenga nkhani zokhudza matenda ashuga pamasamba ochokera ku JDRP kapena ADA, kufunafuna magulu othandizira, kupita kumisonkhano, kumathandiza kwambiri.

American Diabetes Association (ADA) imapereka lembani buku la chisamaliro 1 la matenda ashuga ngati kutsitsa kwaulere kuti muthandize kufotokozera zonse. Lankhulani ndi gulu la chisamaliro cha mwana wanu, ndikufunsani funso lililonse lomwe mungaganizire-alipo kuti akuthandizeni kuzolowera matenda a mwana wanu.

2. Tengani zinthu tsiku limodzi nthawi.

Ngakhale mutha kumvetsetsa momwe matenda a shuga amagwirira ntchito pamlingo waluntha, chowonadi ndichakuti nthawi zina zinthu zimatha kuchitika zomwe zimamveka kuti simungathe kuzilamulira. Iyi ikhoza kukhala nthawi yovuta kwambiri komanso yowopsa kwa mwanayo komanso kwa kholo, a McCrudden akuti. Singano zimatha kukhala zopweteka kapena zoyambitsa nkhawa poyamba. Kapenanso, mwina mwana wanu amachita manyazi kuthana ndi vuto pamaso pa ana ena kapena akumva ngati cholemetsa.

Lisa Goldsmith, wa ku Natick, Massachusetts, yemwe mwana wake wamkazi anapezeka ali ndi zaka 7. Anatha kuchita chilichonse bwinobwino komabe nkukhalabe ndi shuga wotsika magazi. Si sayansi yeniyeni ndipo simudzakhala angwiro. Koma mupeza chizolowezi ndikupanga chatsopano. Mukamazolowera kwambiri momwe zinthu zilili, mudzakhala ndi masiku abwino.

3. Funsani zaukadaulo.

Kusamalira ana ashuga kumafunikira zida zambiri: ma syringe, insulini, mita yoyesera magazi m'magazi, zotsekemera, zotsekemera za mowa, ndi zinthu zina. Anthu ambiri amaganiza kuti jakisoni ndiyo njira yokhayo yopezera insulini ndi kuyezetsa magazi ndiyo njira yokhayo yoyezera shuga, koma palibe kukula kwake koyenera-njira yonse yoyang'anira matenda ashuga. Ndi jakisoni, ana amafunikira kawiri kapena kupitilira apo patsiku. Ena amasankha kugwiritsa ntchito pampu ya insulini, chida chovala chomwe chimatulutsa insulini tsiku lonse ndipo amatha kupatsa insulini musanadye ndikudina batani, osati kudzera mu jakisoni.

Pali kupita patsogolo kwatsopano kwambiri muukadaulo wa matenda ashuga, a McCrallen atero. Ndikulangiza odwala kuti akumane ndi Mphunzitsi wa Matenda a shuga yemwe amadziwa zonse zomwe angasankhe kunjaku.

Pampu ya insulini imatha kupangitsa kuti kukhale kosavuta kuti magazi azikhala ndi magazi m'magazi oyenera (ngakhale amafunikirabe kuyang'anitsitsa). Palinso chida chovala kuti muwone shuga wamagazi wotchedwa CGM) yemwe amatha kutumiza magazi m'magazi pafoni kapena foni yam'manja. Ma CGM amatha kuwonetsa bwino mayendedwe amtundu wa shuga kuposa ndodo zamiyala ndi mita, koma amafunika kuvala sensa m'thupi kwakanthawi.

Ndikulangiza kwambiri kuti mupezere mwana wanu CGM, ngati zingatheke kwa inu komanso ngati mwana wanu angathe kutero, akutero a Susan Cotman, aku Wayland, Massachusetts, omwe mwana wawo wamkazi adapezeka zaka ziwiri zapitazo. Zabweretsa mtendere wochuluka wamaganizidwe, komanso kuzindikira bwino momwe magazi a mwana wanga wamkazi amayankhira pazakudya zomwe amadya komanso zolimbitsa thupi. … Kuwona kuchuluka kwake kwa shuga mwatsatanetsatane ndi CGM, motsutsana ndi kuwunika kwa zala nthawi ndi nthawi, kunanditsegulira maso, ndipo kwandiphunzitsa kuti zomwe ndimaganiza kuti ndimamvetsetsa pazakudya komanso momwe zimakhudzira thupi lanu sizowona, makamaka mwa munthu yemwe thupi lake silitha kupanga insulini.

Koma kukhala ndiukadaulo wothandiza sikumalowetsa kuganiza mwakusankha zakudya, masewera olimbitsa thupi, komanso kuchuluka kwa insulin. Cholakwika chachikulu ndikuti zida izi zimathandizira wodwalayo, akutero McCrudden. Wodwalayo amafunikirabe kukhala wanzeru pophunzira momwe angathetsere mavuto. Ngakhale chipangizocho ndichothandiza, wodwalayo amafunika kupanga zisankho ndikukhala otenga nawo mbali pazisamaliro zake, akutero.

4. Pezani chithandizo.

Kulankhula ndi ena omwe amapeza kungakupatseni chidaliro komanso kumvetsetsa za tsiku ndi tsiku lanu. Zingamveke zambiri, koma simuli nokha. Ana 18,400 ndi achinyamata amapezeka ndi matendawa mtundu wa 1 shuga chaka chilichonse. Pezani munthu weniweni kuti akuthandizireni, musachite izi nokha, atero a Moira McCarthy, wolemba Buku la Everything Parent's Guide kwa Ana omwe ali ndi matenda a shuga a achinyamata . Mwana wake wamkazi Lauren anapezeka zaka 22 zapitazo ali ndi zaka 6.

Pezani kholo lina kapena wamkulu yemwe ali ndi mtundu 1, amalangiza. Pali njira zambiri zowapezera. Mutha kuyimbira mutu wapafupi wa Juvenile Diabetes Research Foundation (JDRF) kapena ADA, kapena funsani katswiri wazamaphunziro anu ngati pali magulu am'magulu omwe mungapeze ena oti mungalankhule nawo. McCarthy akuvomereza kuti pali magulu ambiri othandizira pa intaneti koma amachenjeza kuti asagwiritse ntchito pokhapokha. Pa intaneti, pakhoza kukhala mantha ambiri ndipo sikuti nthawi zonse zimakhazikika pazowona, akutero. Kulumikizana ndi anthu omwe adadwala matenda amtundu woyamba kungathandize banja lanu kusintha.

5. Sungani maloto amoyo.

Musalole kuti matenda ashuga asinthe zomwe mwakhala mukuganiza kuti mwana wanu akhoza kukwaniritsa. Mwana wake wamkazi atapezeka ndi zaka 7, Goldsmith adamva upangiri waluntha: ziyembekezo zonse ndi maloto omwe ndidakhala nawo kwa Madelyn dzulo atha kukhala chiyembekezo chonse komanso maloto omwe ndili nawo lero, adatero. Ndimayesetsa molimbika kuti Madelyn asamve ngati ndikudwala matendawa. Ngati pali masewera omwe amakonda, amatha kusewera. Ankafuna kupita kumsasa usiku wonse, ndipo tinapeza njira yotumizira iye kuti akhale otetezeka. Zitenga kukonzekera kwambiri komanso kusamalira mseri, koma ndidadzilonjeza kuti ndipeza njira yomuthandizira kuchita chilichonse chomwe akufuna.