Momwe mungasamalire kugona kwa ana omwe ali ndi matenda ashuga usiku umodzi

Maphunziro a Zaumoyo

Pamene mwana wake wamkazi wazaka 9 Addison adabwera kunyumba kuchokera ku phwando lake loyamba kugona, anali wokondwa kwambiri, akufotokoza a Sarah Paul, aku Germantown, Wisconsin. Pomaliza pake adakhala ndi abwenzi kunyumba ya wina. Adadziwa kuti linali gawo lalikulu.

Addison wakhala ndi mtundu wa 1 shuga (T1D) kuyambira zaka 2 ndi theka. Iye wavala ukadaulo wopulumutsa moyo kuti amupatse insulini ndikuwunika kusinthasintha kwa magazi m'magazi kuyambira zaka 3. Koma anali asanayambe kugona.

Ana omwe ali ndi matenda a shuga a mtundu woyamba samatulutsa insulin, mahomoni omwe amasintha chakudya kukhala mphamvu. Popanda insulini-kapena insulini yokwanira-chakudya chimasandulika glucose (kapena shuga), koma thupi silingagwiritse ntchito. Kuchuluka kwa shuga kumatha kuyambitsa matenda ashuga ketoacidosis. Magazi otsika amatha kusokoneza, kutuluka thukuta, kugwedezeka, kutaya chidziwitso, ndi kugwidwa. Mbali zonse ziwiri zitha kukhala zowopsa, ngakhale zakupha, ndipo zimafunikira chithandizo mwachangu-nthawi zina ngakhale kupita kuchipatala kukayang'anira.

Paphwando la kugona bwino, mwanayo ndipo makolo omwe akukhala nawo akuyenera kudziwa momwe angayang'anire kuchuluka kwa shuga wamagazi komanso momwe angachitire bwino kapena motsika moyenera. Zitha kukhala zowopsa kwa makolo a ana omwe ali ndi matenda ashuga aubwana. Koma, nthawi zonse pamakhala njira yopangira zinthu kuti ana omwe ali ndi matenda ashuga achichepere atha kutenga nawo mbali pazogona, m'misasa, kapena zochitika zina zomwe zimafuna kukhala kwina usiku wonse mosadalira.

ZOKHUDZA: Mwana wanu anapezeka ndi matenda a shuga aana. Chotsatira ndi chiyani?

Momwe mungakonzekerere kugona ndi matenda ashuga achichepere

Monga mbali zina zonse zokhala ndi matenda ashuga aubwana, kukonzekera kugona usiku ndikofunikira. Banja lirilonse ndi losiyana, koma mukadakana inde yopanda matenda ashuga, ndiye kuti mukuyesetsa kuti inde ndi matenda ashuga, atero a Diane Herbert, aphunzitsi ovomerezeka a shuga komanso wamkulu wa Nkhani za E1c , kampani yothandizira odwala matenda a shuga ku Philadelphia.

Kodi njira yabwino kwambiri yokonzekera ndi iti? Akatswiri a matenda ashuga — ndi makolo omwe adakhalapo nawo adagawana izi.

Khalani ndi phwando logona, kapena yambani ndi kugona.

Makolo ena amagona pansi, Herbert amalimbikitsa. Apa ndipomwe mwanayo amakhala kunyumba ya mnzake mochedwa, amasintha zovala zogonera, koma amapita kunyumba asanagone kwenikweni. Kuyamba kugona kumadalira msinkhu wa mwanayo, akutero.

Asanapite koyamba kunyumba ya mnzake, mwana wamkazi wa Sarah Addison adaloledwa kukhala ndi abwenzi kugona kunyumba kwake - koma samatha kukhala kunyumba zawo mpaka atadziwa kuyesa magazi ake momwe angayesere shuga komanso momwe angachiritsire otsika kapena otsika milingo molingana.

Yesani kuyesa kuti mukhale odziyimira pawokha asanagone usiku wonse.

Ngati mwana wanu ali ndi matenda a shuga aana, mwa kudziyesa m'magazi a shuga, kupanga zisankho za insulini potengera zomwe zimadyedwa, komanso / kapena kusintha zigawo za pampu ya insulini mosadalira, ndi nthawi yoyesera kunyumba usiku.

Sankhani tsiku la mwambowu, mubwerere mwezi umodzi kapena kupitilira apo, ndikukonzekeretsa aliyense, Herbert akutero. Pangani maluso pakapita nthawi. Nthawi yoti mudziphunzire si tsiku loti mugone.

Lankhulani ndi makolo omwe akukondweretsani za maudindo a T1D.

Amayi a Addison amafuna kuti azikhala omasuka ndikumvetsetsa kwa kholo lomwe likukhala nawo chifukwa cha matenda ashuga achichepere. Amayi a abwenzi ake adandilumikizana ndikufunsa ngati Addison abwera ndipo tinakambirana kuchokera pamenepo, akutero a Sarah. Sanadziwe kalikonse za matenda ashuga, ndipo ndidapita kunyumba kwake ndikumuwonetsa zida zomwe Addison amagwiritsa ntchito. Amayi adatsika msanga momwe amagwirira ntchito, anali ndi madzi owonjezera pamanja, ndipo adati ayika foni yake usiku wonse kuti nditha kulumikizana nawo.

Osachepera, makolo a ana omwe ali ndi matenda ashuga ayenera kulemba dongosolo ladzidzidzi kwa makolo omwe akukhala nawo, atero Anastasia Albanese-O'Neil, mphunzitsi wodziwika bwino za matenda ashuga komanso pulofesa wothandizira kuchipatala komanso director of maphunziro a shuga ndi ntchito zamankhwala ku Yunivesite ya Florida.

Lembani mndandanda wazomwe mungachite muzochitika zina.

Ziyenera kuphatikizapo momwe mungayang'anire ndi kuchizira shuga wambiri wamagazi, zizindikilo za ketoni [zomwe zimapezeka mumkodzo kapena m'magazi pakakhala milingo yambiri) ndi mayina ndi manambala a foni omwe mungalumikizane nawo, atero a Albanese-O'Neil.

Pakani zonse zomwe mwana wanu angafunike kuti azitha kudzisamalira bwino.

Izi zitha kuphatikiza:

• Masirinji ndi insulin ngati mwana wanu atawombera
• Pampu ya insulini komanso kusintha kwa zinthu zina ngati pampuyo ingafunike kusinthidwa mukadali pa sleepover
• Mamita a glucose okhala ndi mabatire owonjezera
• Mzere woyesera
• Ma lancets ndi swabs zakumwa
• Gwero la shuga wothamanga kwambiri monga mabokosi angapo amadzi kapena chidebe chama tabu a shuga
• Kuwunika kwa glucose kosalekeza ngati mwana wanu agwiritsa ntchito imodzi
• Chaja cha pampu ya insulin ndi / kapena kuwunika mosalekeza kwa glucose, ngati kuli kofunikira

Phunzitsani mwana wanu malankhulidwe.

Addison amagwiritsa ntchito pulogalamu yowunika shuga (CGM) yomwe imazindikira kusintha kwa shuga, komanso mpope wa insulin womwe umatulutsa insulin tsiku lonse komanso umalola wogwiritsa ntchito insulin asanadye popanda jakisoni nthawi iliyonse.

Kwa mwana yemwe sagwiritsa ntchito CGM kapena jakisoni wa insulin m'malo mogwiritsa ntchito pampu ya insulini, mwanayo amafunika kuyesa kuchuluka kwa magazi m'magazi pafupipafupi ndikuchita moyenera, kapena kugwira ntchito ndi kholo lomwe likulandila kutero.

Albanese-O'Neil akulangiza mwana wanu kuti azikambirana ndi abwenzi komanso makolo awo za matenda awo. Apatseni chilankhulo kuti akambirane za matenda awo ashuga kuti akhale omasuka komanso olimba mtima, akutero.

Limbikitsani mwana wanu kuti azilankhulana.

Ngati mwana angathe, pampu, amatha kuyesa ndikupeza bwino, kapena kuyimba foni ndikutsatira malangizo a kholo kuti azimwetsa insulini pang'ono, atero a Gary Scheiner, aphunzitsi ovomerezeka a shuga komanso mwini wake wotsogolera kuchipatala wa Ntchito Zophatikiza Matenda A shuga ya Wynnewood, Pennsylvania.

Ngakhale ana atakalamba mokwanira kuthana ndi matenda awo ashuga, sizimapwetekanso kuwunika kawiri amayi ndi abambo, kapena kutsimikizira kuti akuchita zoyenera. Adziwitseni kuti zili bwino kutumizirana mameseji kapena kuyimbira foni kuti muwatsimikizire ndi kuwathandiza-ngakhale atakhala nthawi yanji usiku.

Phunzirani kusiya, pang'ono.

Usiku woyamba uja, kudalira ukadaulo wa shuga womwe wavala zaka zisanu ndi chimodzi zapitazi, Sarah adawona milingo ya magazi a Addison kudzera pulogalamu ya foni yam'manja. Chifukwa Sarah amagwiritsidwa ntchito kuyang'anira Addison kunyumba-usiku wonse ndikumadzuka pafupipafupi kuti awone kuchuluka kwa shuga (CGM imafunika kuwerengedwa ndi ndodo zala) - zinali zovuta kuziwonera patali. Sindinagone tulo kumapeto kwanga, koma amva kukhala wodziyimira pawokha, akutero Sarah. Timayesetsa kumulola kuti akhale mwana komanso azikhala ndi zikhalidwe zambiri momwe angathere.

Yembekezerani zosakhazikika.

Chifukwa cha zakudya zosiyanasiyana ndi zochitika zokhala ndi usiku umodzi, Scheiner akuti simuyenera kuchita mantha ndi zina mwa zosinthazi. Musayembekezere shuga wamba wamagazi ndimitundu yamtunduwu, chifukwa amatha kuwuka kapena kugwa ngati mwanayo akuthamangitsa ena kuzungulira nyumba pakati pausiku kapena akudya a Doritos mchikwama chachikulu, akutero. Simuyenera kukhala ndi kasamalidwe kabwino ka shuga m'magazi awa. Musachite mantha ngati mwana wanu [ali ndi shuga wowerenga magazi] mzaka za m'ma 200 pamikhalidwe ngati izi.

Matenda ashuga sayenera kulanda mwana wanu zomwe zimachitikira msinkhu. Sleepovers ndi mwambo wapadera waubwana ndipo ana omwe ali ndi matenda ashuga amayenera kutenga nawo mbali ngati zingatheke, Albanese-O'Neil akuti. Ngakhale zidzafunika kukonzekera kwina komanso kufunika kophunzitsira banja lomwe lalandilidwa, mphotho yakukumbukira moyo wonse ndiyofunika kuyesetsa.